This work was developed with support from the Maternal and Child Health Bureau, Health Services, and Resources Administration, U.S. Department of Health and Human Services, under grants #U41MC4494 and #U41MC13618

Data Sources & Methods

Where the data comes from: full sources and methods

Child Population

Number of children
Children as a percentage of the total population
The Kaiser Family Foundation, Population Distribution by Age, states (2014). Kaiser Family Foundation estimates based on the Census Bureau's March 2015 Current Population Survey (CPS: Annual Social and Economic Supplement). Retrieved on December 1, 2015 from http://kff.org/other/state-indicator/distribution-by-age/

Race/Ethnicity

Percentage of children, by race/ethnicity
Derived from Census data by subtracting the population 18 years and older from the population of all ages, then dividing by the population of all ages, for each race/ethnicity. U.S. Census Bureau (2010). American FactFinder, 2010 Census Redistricting Data (Public Law 94-171), Summary File, Table P2 Hispanic or Latino, and Not Hispanic or Latino by Race, Universe: Total Population and Table P4 Hispanic or Latino, and Not Hispanic or Latino by Race for the Population 18 years and over, Universe: Total Population 18 years and over. Retrieved April 3, 2013 from http://factfinder2.census.gov/faces/tableservices/jsf/pages/productview.xhtml?pid=DEC_10_SF1_QTP3&prodType=table

Household

Among households with children, percentage of households with one, two, or three or more adults
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 3, 2013 from http://childhealthdata.org/browse/survey/results?q=1839&r=1

Urban/Rural

Percentage of population living in urban areas
The Kaiser Family Foundation, Population Distribution by Metropolitan Status, states (2012-2013), U.S. (2013). Data Source: Urban Institute and Kaiser Commission on Medicaid and the Uninsured estimates based on the Census Bureau's March 2013 and 2014 Current Population Survey (CPS: Annual Social and Economic Supplements). Retrieved on March 23, 2015 from http://kff.org/other/state-indicator/metropolitan-distribution/#

Special Health Care Needs

Percentage of children who have special health care needs
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 3, 2013 from http://childhealthdata.org/browse/survey/results?q=1792&r=1
Percentage of children with reported special health care needs, by age group
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 3, 2013 from http://childhealthdata.org/browse/survey/results?q=1792&r=1&g=376
Percentage of children with reported special health care needs, by sex
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1792&a=3014&g=377
Percentage of children with reported special health care needs, by race/ethnicity
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1792&a=3014&g=378
Percentage of children with reported special health care needs, by primary household language
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1792&a=3014&g=379
Percentage of children with reported special health care needs, by household income
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1792&a=3014&g=380
Percentage of households with one or more children with special health care needs
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 3, 2013 from http://childhealthdata.org/browse/survey/results?q=1813&r=1

Low Birth Weight

Percentage of live births that are low birth weight
National Vital Statistics Reports, Vol. 64, No. 12, December 23, 2015. Table I—9. Low birthweight births, by race and Hispanic origin of mother: United States, each state and territory, 2014. Retrieved May 24, 2016 from http://www.cdc.gov/nchs/data/nvsr/nvsr64/nvsr64_12_tables.pdf

Special Education

Percentage of public school students enrolled in Special Education
U.S. Department of Education, The National Center for Education Statistics, Digest of Education Statistics (2013). Table 204.70. Number and percent of children served under Individuals with Disabilities Education Act, Part B, by age group and state or jurisdiction: Selected years, 1990-91 to 2011-2012. Retrieved May 17, 2016 from https://nces.ed.gov/programs/digest/d13/tables/dt13_204.70.asp

Income

Median annual household income
The Kaiser Family Foundation, Median Annual Household Income 2014. Data Source: U.S. Census Bureau, 2014 Current Population Survey, Annual Social and Economic Supplements. Median Household Income by State- Single Year available at http://www.census.gov/hhes/www/income/data/statemedian/index.html. Retrieved August 5, 2016 from http://kff.org/other/state-indicator/median-annual-income/.
Percentage of children in families with income below 200% of the federal poverty level
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 3, 2013 from http://childhealthdata.org/browse/survey/results?q=2152&r=1
Percentage of CSHCN in families with income below 200% of the federal poverty level
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 3, 2013 from http://childhealthdata.org/browse/survey/results?q=2152&r=1&g=388

Unemployment

Unemployment rate
The Kaiser Family Foundation, Unemployment Rate (Seasonally Adjusted), 2013-2014. Data Source: State and territory figures from the Table 3, Regional and State Employment and Unemployment: October 2014, and Unemployment rates by State, seasonally adjusted: October 2013 and 2014, Bureau of Labor Statistics, available at http://www.bls.gov/news.release/laus.t03.htm U.S. figures from Bureau of Labor Statistics, available at http://data.bls.gov/cgi-bin/surveymost?bls. Retrieved on March 23, 2015 from http://kff.org/other/state-indicator/unemployment-rate/.

Financial Impact of Caregiving

Percentage of families who report they have reduced work hours or stopped working to care for their CYSHCN
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 3, 2013 from http://childhealthdata.org/browse/survey/results?q=1634&r=1

Employer Size

Distribution of employers, by number of employees
Calculated by Catalyst Center staff by dividing the number of firms in each size category by the total number of firms. U.S. Census Bureau, Statistics of U.S. Businesses (SUSB). Data Source: 2013 U.S. and state industry totals. Data Released February 9, 2016. Retrieved on July 27, 2016 from http://www.census.gov/econ/susb/.

Employer-Sponsored Health Insurance

Percentage of private sector employers offering health insurance
The Kaiser Family Foundation, Percent of Private Sector Establishments That Offer Health Insurance to Employees, 2013. Data Source: Agency for Healthcare Research and Quality, Center for Cost and Financing Studies. 2013 Medical Expenditure Panel Survey - Insurance Component. Table II.A.2. Retrieved on July 15, 2016 from http://kff.org/other/state-indicator/percent-of-firms-offering-coverage/
Percentage of private sector employers offering health insurance, by number of employees
The Kaiser Family Foundation, Percent of Private Sector Establishments That Offer Health Insurance to Employees, by Firm Size, 2013. Data Source: Agency for Healthcare Research and Quality, Center for Cost and Financing Studies. 2013 Medical Expenditure Panel Survey - Insurance Component. Table II.A.2. Retrieved on July 15, 2016 from http://kff.org/other/state-indicator/firms-offering-coverage-by-size/#

Medicaid Eligibility

Maximum allowed income for Medicaid enrollment, as a percentage of the federal poverty level, compared to the federal minimum requirement
For pregnant women,The Kaiser Family Foundation, Medicaid and CHIP Income Eligibility Limits for Pregnant Women at Application, Effective January 1, 2016 (as a Percent of Federal Poverty Level (FPL)). Data Source: Based on data from the Centers for Medicare and Medicaid Services (CMS), State Medicaid and CHIP Income Eligibility Standards Effective January 1, 2016; accessed July 15, 2016. Retrieved on July 15, 2016 from http://kff.org/health-reform/state-indicator/medicaid-and-chip-income-eligibility-limits-for-children-as-a-percent-of-the-federal-poverty-level/.

Federal Match for Medicaid

Federal Medical Assistance Percentage (FMAP)
The Kaiser Family Foundation, Federal Medical Assistance Percentage (FMAP) for Medicaid and Multiplier. Data Source:FY 2017:Federal Register, December 2, 2014 (Vol 79, No. 231), pp 71426-71428, at http://www.gpo.gov/fdsys/pkg/FR-2011-11-30/pdf/2011-30860.pdf. Retrieved July 27, 2016 from http://kff.org/medicaid/state-indicator/federal-matching-rate-and-multiplier/.

Education Expenditures

Combined local, state and federal per pupil education expenditures
U.S. Department of Education, National Center for Education Statistics, Statistics of State School Systems, 1969-70; Revenues and Expenditures for Public Elementary and Secondary Education, 1979-80; and Common Core of Data (CCD), "National Public Education Financial Survey," 1989-90 through 2008-09. Retrieved April 3, 2013 from http://nces.ed.gov/programs/digest/d11/tables/dt11_195.asp
Federal per pupil IDEA expenditures for children aged 3-21 in Special Education
Calculated by Catalyst Center Staff using the total state grant award for special education divided by number of children served under the Individual with Disabilities Education Act (IDEA), Part B. Source for total state grant award for special education: U.S. Department of Education, Rehabilitation Services Administration (RSA). Fiscal Year 2009-FY2011 President’s Budget State Tables for the U.S. Department of Education. Retrieved May 8, 2013 from http://www2.ed.gov/about/overview/budget/statetables/11stbyprogram.pdf. Source for total number of children served under IDEA, Part B: U.S. Department of Education, The National Center for Education Statistics, Digest of Education Statistics (2011). Table 48. Number and percent of children served under Individuals with Disabilities Education Act, Part B, by age group and state or jurisdiction: Selected years, 1990-91 to 2009-10. Retrieved July, 3, 2013 from http://nces.ed.gov/programs/digest/d11/tables/dt11_048.asp

Health Care

Number of children’s hospitals
Children's Hospital Association. Children's Hospital Directory: United States. Retrieved on July 27, 2016 from https://www.childrenshospitals.org/.
Number of pediatricians per 1,000 children
Calculated by Catalyst Center staff using the number of pediatricians in each state divided by the total number of children per 1,000. Source for the number of pediatricians per state: American Board of Medical Specialties, 2004-2013 ABMS Certificate Statistics, Table 3D: Geographic Distribution of ABMS Member Board Diplomats by General Certificate. Retrieved on April 8, 2015 from http://www.abms.org/media/84770/2013_2014_abmscertreport.pdf. Source for the number of children per state: Kaiser Family Foundation estimates based on the Census Bureau's March 2015 Current Population Survey (CPS: Annual Social and Economic Supplement). Retrieved on December 8, 2015 from http://kff.org/other/state-indicator/distribution-by-age/#.
Number of family practitioners
FULL SOURCE: American Board of Medical Specialties, 2013-2014 ABMS Certificate Statistics, Table 3D: Geographic Distribution of ABMS Member Board Diplomats by General Certificate. Retrieved on April 8, 2015 from American Board of Medical Specialties, 2012 ABMS Certificate Statistics, Table 3C: Geographic Distribution of ABMS Member Board Diplomats by General Certificate (as of October 9, 2012).
Number of child and adolescent psychiatrists per 1,000 children
Calculated by Catalyst Center staff using the number of child and adolescent psychiatrists in each state divided by the total number of children per 1,000. Source for the number of pediatricians per state: American Board of Medical Specialties, 2004-2013 ABMS Certificate Statistics, Table 3D: Geographic Distribution of ABMS Member Board Diplomats by General Certificate. Retrieved on April 8, 2015 from http://www.abms.org/media/84770/2013_2014_abmscertreport.pdf. Source for the number of children per state: Population and demographic data on are based on analysis of the Census Bureau’s March 2015 Current Population Survey (CPS; Annual Social and Economic Supplement) and may differ from other population estimates published yearly by the Census Bureau. U.S. and state population data displayed on this site are restricted to the non-institutionalized population. Retrieved on December 8, 2015 from http://kff.org/other/state-indicator/distribution-by-age/.

Early Intervention Eligibility

Eligibility for Early Intervention services includes infants and toddlers “at risk” of developmental delay
States’ and territories’ definitions of/criteria for IDEA Part C Eligibility. Retrieved March 20, 2015 from http://www.nectac.org/~pdfs/topics/earlyid/partc_elig_table.pdf

Mental Health

Percentage of children served by the state mental health agency
SAMHSA National Mental Health Information Center (2014). 2014 CMHS Uniform Reporting System Output Tables. Retrieved September 25, 2015 from http://www.samhsa.gov/data/us_map. http://www.samhsa.gov/data/us_map.
Percentage of CSHCN with emotional, behavioral or developmental issues whose families have adequate private and/or public insurance to pay for the services they need
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved December 10, 2015 from http://childhealthdata.org/browse/allstates?q=1630&g=370&a=3043.

Oral Health

Percentage of children receiving preventive dental care in the past year
National Survey of Children's Health. NSCH 2011/12. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 5, 2013 from http://childhealthdata.org/browse/survey/results?q=2500&r=1
Percentage of CSHCN receiving preventive dental care in the past year
National Survey of Children's Health. NSCH 2011/12. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved July 3, 2013 from http://childhealthdata.org/browse/survey/results?q=2500&r=1&g=461
Percentage of children with teeth in excellent or very good condition
National Survey of Children's Health. NSCH 2011/12. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 5, 2013 from http://childhealthdata.org/browse/survey/results?q=2458&r=1
Percentage of CSHCN with teeth in excellent or very good condition
National Survey of Children's Health. NSCH 2011/12. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 5, 2013 from http://childhealthdata.org/browse/survey/results?q=2458&r=1&g=461

Foster Care

Number of children in foster care
U.S. Department of Health and Human services, Administration for Children and Families, Children's Bureau, Adoption and Foster Care Analysis and Reporting System (AFCARS) (July 2015). Numbers of Children In Foster Care on September 30th, by State FY 2005—FY 2014. Retrieved on June 2, 2016 from http://www.acf.hhs.gov/sites/default/files/cb/children_in_care_2014.pdf
Percentage of children in foster care
Calculated by Catalyst Center staff using the number of children in foster care in each state (as of September 30th 2014) divided by the total number of children in each state. Source for the number of children in foster care per state: Adoption and Foster Care Analysis and Reporting System (AFCARS) (July 2015). Numbers of Children In Foster Care on September 30th, by State FY 2005—FY 2014. Retrieved on June 2, 2016. from http://www.acf.hhs.gov/sites/default/files/cb/children_in_care_2014.pdf. Source for the number of children per state: Population Distribution by Age, states (2014). Kaiser Family Foundation estimates based on the Census Bureau's March 2015 Current Population Survey (CPS: Annual Social and Economic Supplement). Retrieved on December 1, 2015 from http://kff.org/other/state-indicator/distribution-by-age/.

Uninsured

Percentage of children without health insurance at some point in the past year
National Survey of Children's Health. NSCH 2011/12. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 5, 2013 from http://childhealthdata.org/browse/survey/results?q=2198&r=1
Percentage of CYSHCN without health insurance at some point in the past year, by age groups
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=2015&g=86&a=2986
Percentage of CYSHCN without health insurance at some point in the past year, by sex
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=2015&a=2986&g=89
Percentage of CYSHCN without health insurance at some point in the past year, by race/ethnicity
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=2015&a=2986&g=88
Percentage of CYSHCN without health insurance at some point in the past year, by primary household language
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=2015&a=2986&g=365
Percentage of CYSHCN without health insurance at some point in the past year, by household income
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=2015&a=2986&g=372
Percentage of CYSHCN without health insurance at some point in the past year, by number of functional difficulties
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=2015&a=2986&g=440
Percentage of CYSHCN without health insurance at some point in the past year
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 5, 2013 from http://childhealthdata.org/browse/survey/results?q=1629&r=1

Underinsured

Percentage of children with inadequate health care coverage
National Survey of Children's Health. NSCH 2011/12. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved June 26, 2013 from http://childhealthdata.org/browse/survey/results?q=2491&r=1
Percentage of CYSHCN with inadequate health care coverage, by age groups
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1630&g=86
Percentage of CYSHCN with inadequate health care coverage, by sex
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1630&g=89
Percentage of CYSHCN with inadequate health care coverage, by race/ethnicity
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1630&g=88
Percentage of CYSHCN with inadequate health care coverage, by primary household language
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1630&g=365
Percentage of CYSHCN with inadequate health care coverage, by household income
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1630&g=372
Percentage of CYSHCN with inadequate health care coverage, by number of functional difficulties
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1630&g=440
Percentage of CYSHCN with inadequate health care coverage
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 5, 2013 from http://childhealthdata.org/browse/survey/results?q=1630&r=1

Private Insurance Coverage

Percentage of children with private health insurance coverage
National Survey of Children's Health. NSCH 2011/12. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved June 26, 2013 from http://childhealthdata.org/browse/survey/results?q=2490&r=1
Percentage of CYSHCN with private health insurance coverage, by age groups
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1810&g=86
Percentage of CYSHCN with private health insurance coverage, by sex
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1810&g=89
Percentage of CYSHCN with private health insurance coverage, by race/ethnicity
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1810&g=88
Percentage of CYSHCN with private health insurance coverage, by primary household language
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1810&g=365
Percentage of CYSHCN with private health insurance coverage, by household income
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1810&g=372
Percentage of CYSHCN with private health insurance coverage, by number of functional difficulties
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1810&g=440
Percentage of CYSHCN with private health insurance coverage
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 5, 2013 from http://childhealthdata.org/browse/survey/results?q=1810&r=1

Public Coverage: Medicaid, CHIP and SSI

Number of children enrolled in Medicaid
Percentage of Medicaid enrollees who are children
The Kaiser Family Foundation, Distribution of Medicaid Enrollees by Enrollment Group, FY2011. Data Source: Kaiser Commission on Medicaid and the Uninsured and Urban Institute estimates based on data from Medicaid Statistical Information System (MSIS) reports from the Centers for Medicare and Medicaid Services (CMS), 2012. Retrieved March 23, 2015 from http://kff.org/medicaid/state-indicator/distribution-of-medicaid-enrollees-by-enrollment-group/.
Percentage of children enrolled in Medicaid or CHIP
National Survey of Children's Health. NSCH 2011/12. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 5, 2013 from http://childhealthdata.org/browse/survey/results?q=2490&r=1
Percentage of CYSHCN enrolled in Medicaid or CHIP, by age groups
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1810&a=3048&g=86
Percentage of CYSHCN enrolled in Medicaid or CHIP, by sex
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1810&a=3048&g=89
Percentage of CYSHCN enrolled in Medicaid or CHIP, by race/ethnicity
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1810&a=3048&g=88
Percentage of CYSHCN enrolled in Medicaid or CHIP, by primary household language
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1810&a=3048&g=365
Percentage of CYSHCN enrolled in Medicaid or CHIP, by household income
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1810&a=3048&g=372
Percentage of CYSHCN enrolled in Medicaid or CHIP, by number of functional difficulties
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1810&g=440&a=3048
Percentage of CYSHCN enrolled in Medicaid or CHIP
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 5, 2013 from http://childhealthdata.org/browse/survey/results?q=1810&r=1
Maximum allowed income for CHIP eligibility as a percentage of the FPL
The Kaiser Family Foundation, Medicaid and CHIP Income Eligibility Limits for Children at Application, Effective January 1, 2016 (as a Percent of Federal Poverty Level (FPL)). Data source: Based on data from the Centers for Medicare and Medicaid Services (CMS), State Medicaid and CHIP Income Eligibility Standards Effective January 1, 2016. Retrieved on July 15, 2016 from http://kff.org/health-reform/state-indicator/medicaid-and-chip-income-eligibility-limits-for-children-as-a-percent-of-the-federal-poverty-level/.
Number of children enrolled in CHIP
The Kaiser Family Foundation, Number of Children Ever Enrolled in the Children’s Health Insurance Program (CHIP), Fiscal Year 2014. Data source: Medicaid.gov, FY2014 Number of Children Ever Enrolled in Medicaid and CHIP. Retreived from: Retrieved October 6, 2015 from http://kff.org/other/state-indicator/annual-chip-enrollment/#.
Percentage of children enrolled in CHIP
Calculated by Catalyst Center staff using the number of children enrolled in CHIP in each state divided by the total number of children in each state. Source for the number of children enrolled in CHIP per state: Kaiser Family Foundation, Number of Children Ever Enrolled in the Children’s Health Insurance Program (CHIP), Fiscal Year 2014. Data source: Medicaid.gov, FY2014 Number of Children Ever Enrolled in Medicaid and CHIP. Retrieved on December 10, 2015 from http://kff.org/other/state-indicator/annual-chip-enrollment/#. Source for the number of children per state : The Kaiser Family Foundation, Population Distribution by Age, states (2014). Kaiser Family Foundation estimates based on the Census Bureau's March 2015 Current Population Survey (CPS: Annual Social and Economic Supplement). Retrieved on August 4, 2016 from hhttp://kff.org/other/state-indicator/distribution-by-age/.
Number of children enrolled in Supplemental Security Income (SSI)
The Kaiser Family Foundation, Distribution of Supplemental Security Income (SSI) Beneficiaries by Age, 2014. Data Source: , SSI Annual Statistical Report, 2014, Table 10 Recipients, by state or other area, eligibility category, and age, December 2014. , Social Security Administration, Office of Retirement and Disability Policy. Available at: https://www.ssa.gov/policy/docs/statcomps/ssi_asr/2014/ssi_asr14.pdf. Retrieved June 2, 2016 from http://kff.org/medicaid/state-indicator/distribution-of-total-ssi-by-age/.
Percentage of children enrolled in Supplemental Security Income (SSI)
Calculated by Catalyst Center staff using the number of children enrolled in Supplemental Security Income in each state divided by the total number of children in each state. Source for the number of children enrolled in Supplemental Security Income: SSI Annual Statistical Report, 2014, Table 10 Recipients, by state or other area, eligibility category, and age, December 2014. Retrieved June 2, 2016 from http://kff.org/medicaid/state-indicator/distribution-of-total-ssi-by-age/. Source for the number of children per state: http://kff.org/other/state-indicator/distribution-by-age/.
TEFRA Medicaid state plan option/Katie Beckett waiver for children
TEFRA information from "Modernizing Medicaid Eligibility Criteria for Children with Significant Disabilities: Moving from a Disabling to an Enabling Paradigm," by MaryBeth Musumeci. American Journal of Law and Medicine, 37(2011): 81-127. Katie Beckett waiver information from Catalyst Center staff review of state Medicaid waivers. Retrieved Sept. 24, 2012 from http://www.Medicaid.gov.
Premium Assistance Programs
U.S. Department of Labor, Employee Benefits Security Administration, Premium Assistance under Medicaid and the Children's Health Insurance Program (CHIP) OMB Control Number 1210-0137 (expires 10/31/2016) (current as of January 31, 2016). Retrieved June 2, 2016 from http://www.dol.gov/ebsa/pdf/chipmodelnotice.pdf.

Dual Public and Private Coverage

Percentage of CYSHCN with a combination of public and private health insurance, by sex
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1810&a=3049&g=89
Percentage of CYSHCN with a combination of public and private health insurance, by race/ethnicity
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1810&a=3049&g=88
Percentage of CYSHCN with a combination of public and private health insurance, by age groups
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1810&g=86&a=3049
Percentage of CYSHCN with a combination of public and private health insurance, by household income
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1810&a=3049&g=3725
Percentage of CYSHCN with a combination of public and private health insurance, by number of functional difficulties
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 5, 2013 from http://www.childhealthdata.org/browse/allstates?q=1810&a=3049&g=440
Percentage of CYSHCN with a combination of public and private health insurance, by primary household language
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1810&a=3049&g=365
Percentage of CYSHCN with a combination of public and private health insurance
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 5, 2013 from http://childhealthdata.org/browse/survey/results?q=1810&r=1

Health Care Reform

Exchange overview
The Kaiser Family Foundation, State Decisions For Creating Health Insurance Marketplaces, 2016. Data compiled through review of state legislation and other Marketplace documents by the Kaiser Family Foundation. For more detailed descriptions of states’ health insurance Marketplace planning and implementation efforts, please visit State Exchange Profiles. For declaration letters on state-based exchanges from the Governors to HHS click here. Retrieved May 19, 2016 from http://kff.org/health-reform/state-indicator/health-insurance-exchanges/
Recommended benchmark plan
Kaiser Family Foundation, Essential Health Benefit (EHB) Benchmark Plans, 2017. Retrieved on July 27, 2016 from http://kff.org/health-reform/state-indicator/essential-health-benefit-ehb-benchmark-plans-2017/
Plan type
Kaiser Family Foundation Essential Health Benefit (EHB) Benchmark Plans, 2017 from 2017 Final List of Benchmark plans, The Center for Consumer Information & Insurance Oversight (CCIIO), The Centers for Medicare & Medicaid Services (CMS), accessed April 15, 2016. Retrieved Jun 2, 2016 from http://kff.org/health-reform/state-indicator/essential-health-benefit-ehb-benchmark-plans-2017/
Approved Section 2703 Health Home State Plan Amendments (SPAs)
The Kaiser Family Foundation, Health Home State Plan Option as of December 2015. Data sources: Medicaid.gov, Approved Health Home State Plan Amendments; Medicaid.gov, Health Home State Plan Amendments, December 2015; Vernon K. Smith, Kathleen Gifford, and Eileen Ellis, Health Management Associates; and Robin Rudowitz, Laura Snyder, and Elizabeth Hinton, Kaiser Commission on Medicaid and the Uninsured. Medicaid Reforms to Expand Coverage, Control Costs and Improve Care: Results from a 50-State Medicaid Budget Survey for State Fiscal Years 2015 and 2016, The Henry J. Kaiser Family Foundation, October 15, 2015. Retrieved from http://kff.org/medicaid/state-indicator/health-home-state-plan-option/ on December 10, 2015.

State Mandated Insurance Benefits (for private ins

Autism
Autism Speaks, State Initiatives (2014, February). Retrieved on March 10, 2014 from http://www.autismspeaks.org/advocacy/states and http://www.autismspeaks.org/sites/default/files/images/government_affairs/states_feb.2014.pdf
Bone Marrow Transplants
Cleft Palate
Congenital Bleeding Disorders
Dental Anesthesia
Diabetes Self-Management
Diabetic Supplies
Council for Affordable Health Insurance (CAHI), Health Insurance Mandates in the States 2010. Retrieved March 15, 2011 from http://www.cahi.org/cahi_contents/resources/pdf/MandatesintheStates2010.pdf (link is currently inactive).
Early Intervention
Catalyst Center communications with state agency contacts and review of state statutes (2011)
Emergency Services
Hearing Aids
Home Health Care
Hospice Care
Kidney Disease Treatment
Mental Health, General
Council for Affordable Health Insurance (CAHI), Health Insurance Mandates in the States 2010. Retrieved March 15, 2011 from http://www.cahi.org/cahi_contents/resources/pdf/MandatesintheStates2010.pdf (link is currently inactive).
Mental Health Parity
National Conference of State Legislatures, State Laws Mandating or Regulating Mental Health Benefits (2014, January). Retrieved March 10, 2014 from http://www.ncsl.org/issues-research/health/mental-health-benefits-state-mandates.aspx
Neurodevelopment Therapy
Newborn Hearing Screening
Newborn Sickle-Cell Testing
PKU/Formula
Prescription Drugs
Rehabilitation Services
Telemedicine
Council for Affordable Health Insurance (CAHI), Health Insurance Mandates in the States 2010. Retrieved March 15, 2011 from http://www.cahi.org/cahi_contents/resources/pdf/MandatesintheStates2010.pdf (link is currently inactive).

Catastrophic Coverage

High-Risk Pool Programs
The Kaiser Family Foundation, State High Risk Pool Programs and Enrollment, 2011. Data Source: Comprehensive Health Insurance for High-Risk Individuals: A State-by-State Analysis. National Association of State Comprehensive Health Insurance Plans, 26th Ed., 2012/2013. Available for order at www.naschip.org. Retrieved April 08, 2013 from http://statehealthfacts.org/comparetable.jsp?ind=602&cat=7

Federal MCHB Core Outcomes for CSHCN

Percentage of CSHCN whose families are partners in shared decision-making for child's optimal health, by primary household language
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1617&g=365
Percentage of CSHCN whose families are partners in shared decision-making for child's optimal health, by household income
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1617&g=372
Percentage of CSHCN whose families are partners in shared decision-making for child's optimal health, by number of functional difficulties
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1617&g=440
Percentage of CSHCN whose families are partners in shared decision-making for child's optimal health, by sex
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1617&g=89
Percentage of CSHCN whose families are partners in shared decision-making for child's optimal health, by race/ethnicity
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1617&g=88
Percentage of CSHCN whose families are partners in shared decision-making for child's optimal health, by age groups
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1617&g=86
Percentage of CSHCN whose families are partners in shared decision-making for child's optimal health
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 8, 2013 from http://childhealthdata.org/browse/survey/results?q=1617&r=1
Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by age groups
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1618&g=86
Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by sex
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1618&g=89
Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by race/ethnicity
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1618&g=88 http://www.childhealthdata.org/browse/allstates?q=1618&g=88
Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by primary household language
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1618&g=365
Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by household income
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1618&g=372
Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by number of functional difficulties
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1618&g=440
Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 8, 2013 from http://childhealthdata.org/browse/survey/results?q=1618&r=1
Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by age groups
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1619&g=86
Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by sex
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1619&g=89
Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by race/ethnicity
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1619&g=88
Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by primary household language
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1619&g=365
Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by household income
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1619&g=372
Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by number of functional difficulties
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1619&g=440
Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 8, 2013 from http://childhealthdata.org/browse/survey/results?q=1619&r=1
Percentage of CSHCN who are screened early and continuously for special health care needs, by age groups
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1614
Percentage of CSHCN who are screened early and continuously for special health care needs, by sex
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1614&g=89
Percentage of CSHCN who are screened early and continuously for special health care needs, by race/ethnicity
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1614&g=88
Percentage of CSHCN who are screened early and continuously for special health care needs, by primary household language
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1614&g=365
Percentage of CSHCN who are screened early and continuously for special health care needs, by household income
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1614&g=372
Percentage of CSHCN who are screened early and continuously for special health care needs, by number of functional difficulties
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1614&g=440
Percentage of CSHCN who are screened early and continuously for special health care needs
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 8, 2013 from http://childhealthdata.org/browse/survey/results?q=1989
Percentage of CSHCN who can easily access community-based services, by age groups
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1615&g=86
Percentage of CSHCN who can easily access community-based services, by sex
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1615&g=89
Percentage of CSHCN who can easily access community-based services, by race/ethnicity
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1615&g=88
Percentage of CSHCN who can easily access community-based services, by primary household language
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1615&g=365
Percentage of CSHCN who can easily access community-based services, by household income
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1615&g=372
Percentage of CSHCN who can easily access community-based services, by number of functional difficulties
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1615&g=440
Percentage of CSHCN who can easily access community-based services
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 8, 2013 from http://childhealthdata.org/browse/survey/results?q=1615&r=1
Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence -- CSHCN ages 12-17 only, by age groups
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1616&g=375
Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence -- CSHCN ages 12-17 only, by sex
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1616&g=89
Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence -- CSHCN ages 12-17 only, by race/ethnicity
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1616&g=88
Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence -- CSHCN ages 12-17 only, by primary household language
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1616&g=365 http://www.childhealthdata.org/browse/allstates?q=1616&g=365
Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence -- CSHCN ages 12-17 only, by household income
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1616&g=372 http://www.childhealthdata.org/browse/allstates?q=1616&g=372
Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence -- CSHCN ages 12-17 only, by number of functional difficulties
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014 from http://www.childhealthdata.org/browse/allstates?q=1616&g=440
Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence -- CSHCN ages 12-17 only
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 8, 2013 from http://childhealthdata.org/browse/survey/results?q=1616&r=1
Percentage of families who report their child's doctors or other health care providers are sensitive to the family's values and customs
National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 8, 2013 from http://childhealthdata.org/browse/survey/results?q=1969&r=1

Financing

Percentage of Title V Block Grant Partnership Budget from State Funds
U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (2014). Federal-State Title V Block Grant Partnership Budget FY 2014. Retrieved May 27, 2015 from https://mchdata.hrsa.gov/tvisreports/FinancialData/FinancialSearch.aspx?FinSearch=A.

Family Involvement

Family Participation in Title V CYSHCN Program Score (Maximum Possible = 18)
U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (2014). Characteristics Documenting Family Participation in Children with Special Health Care Needs Programs, Annual Report Year 2013. Retrieved May 27, 2015 from https://mchdata.hrsa.gov/tvisreports/ProgramData/CshcnFamParticCharac.aspx.